Sunday, July 1, 2007
No 3 month xrays
Peyton went to therapy again this past week and also back to be recasted. His orthopedic doctor says now that they won't do x-rays for a while since his joints are still so soft and won't show much detail. He drives us crazy telling us one thing one week and then something different the next week. But soon we'll be with Shriner's so we'll survive until then. We've heard from the therapist that Shriner's and his orthopedic doctor don't mix - he'll pretty much refuse to see Peyton once he finds out we're going. We are glad we haven't let on to him that he was accepted - we don't want him to be treated any different. The occupatioal therapist (works with upper limbs mostly) showed me some range of motion exercises to do at home and also some gentle stretching. All is going to be focused on his shoulders and shoulder blades for now. He thinks that in order to get anything significant out of Peyton's elbows, wrists, and fingers that it will take splints and surgeries. Also he says he just wants to focus on one thing at a time. His orthopedic doctor says he is too small for splints right now. But we'll see what Shriner's will do for him. I ordered a wonderful book on Arthrogryposis that the therapists are actually borrowing to read. It's the only one in print that is recent and easy to follow. It tells all about the condition and the different types, surgeries, therapy, etc. I was so happy to find it. Everything is still set for us to go to the convention on the 12th. Peyton will return to the orthopedic doctor on the 10th to have his casts removed and then no casts will be put back on for a week. His skin needs to air out and heal. It is so red and irritated. It looks like he has an awful sunburn. I feel so sorry for him. At least we won't have to worry about traveling with him having those things on down in that Texas heat. Which Tennessee has some pretty bad heat right now too. We will be so excited to give him his first real bath. He has had only sponge baths since birth - at first because of his umbilical cord stump and then he was casted for the first time before it even fell off. My plan is to let his little feet soak away in warm water and get all that gook off that they've been caking on for weeks to make his casts stick and not slide off. I tried to wash his feet and legs this past time before they recasted him but his skin was so sensitive and he was screaming. And for those who don't know, there is a guy with arthrogryposis on this season's America's Got Talent. His name is Luca aka "Lazy Legs". He is affected in his legs only. He is famous for his break dancing. I had seen his website before and it is truly phenominal what he can do. We're having a yard sale next weekend - pray we get rid of everything! We are desperate to clear out the clutter before the house is listed on the market.
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