The Casts are OFF!!

I took Peyton to have his casts removed today. Well, actually have 1 cast removed. The other actually fell off on its own this morning. I could've saved a trip to Knoxville if I could've got the other one off too!! I'd never get that lucky though. So anyway, he gets a break for a little while. His ankles have pressure sores, bruising, and his skin is cracked all over. I'd say he deserves a break. He's actually scheduled to be recasted Tuesday, a week from today but I think I will reschedule and give him a little longer. He needs it so badly. I look at his feet and I want to cry. If you barely touch them, he WAILS. But they look good otherwise, casting is doing a lot of good so far. The doctor has now decided he wants our therapist to be working on all of Peyton's joints, not just the shoulders. I tell you, I am going to lose it. If you read the last post, or maybe it was the one before that one, you'll see what the last encouter was all about. He asked me today, "so how is the stretching of his wrists coming along?" I was like, what stretching?? They said they didn't want to bite off more than we could chew so we're just doing the shoulders. He said no no no he wants ALL the joints to be worked on. I said it before and I will say it again, I CAN'T WAIT TO GO TO SHRINERS. Thankfully I do stretch his wrists a little on my own, but not anything they've shown me - Duke taught us that. I have received alot of great guidance from the other parents with the support group I joined. Their kids got the works early on AND SPLINTS. Peyton's getting the shaft because there's no doctors in this area who know enough about his condition. Just a little aggravated today I guess....
But we fly out Thursday and I can't wait. Hopefully we get lots of good info and links to resources while we're there. We'll tell you all about it when we get back. . .