Crash

We heard from Shriner's Thursday about Peyton's foot surgery. They had the entire board meet last week about him and they have decided they will not do any surgeries until he has a kidney operation. They will not risk losing his kidneys with the anesthesia. Dr. Barnes has said that he wants us to seek a second opinion from Duke as soon as possible because they do not agree with the doctor here just letting him go like he has - they believe he is in fragile condition. Needless to say we were pretty upset. After an entire day of phone calls, messages, and return phone calls we finally got a schedule going for this month. We were able to have Peyton's renal scan moved up to this Thursday - Oct. 4 at 1:30. Then we're going back to Houston the 7th or 8th through the 11th so we can get him some new splints. He has almost outgrown all he has. And we'll also be able to sit down with the doctors and sort this stuff out. We are hoping that tomorrow Shriner's will call the kidney specialist here and get on the same page. The kidney specialist is clearing Peyton for surgery and says there is no reason why not. So we really need for these two places to get together and see what they can come up with. Dr. Makres called me yesterday and counseled me a little bit about the whole situation which was quite helpful. He says before we take him to Duke we need to check and see if Dr. Preston Smith, a urologist in Knoxville, will see Peyton and give his opinion. He says Duke has no advantage over him unless he is just uncomfortable with Peyton's arthrogryposis. So he is going to call this doctor tomorrow and find out. Maybe we'll get this worked out! I feel like this renal scan will be the determining factor. And it could boil down to us taking Peyton somewhere else for treatment of his arthrogryposis. So of course, as always - - MORE WAITING. We will update on that again soon.
As for Morgan - she had her colonoscopy this past Wednesday and all is well. She has a perfect healthy colon and there is no sign of damage from the chronic constipation over the last several years. The child doesn't even have the first hemmorhoid which is hard to believe. It was a tough couple of days for her but she sailed right through it and is back to her normal self. We will just have to keep her on stool softeners and practice better bathroom habits. That's all we can do! Her diet is perfect so it's not that.
Just pray everything works itself out with Peyton's treatment.