Peyton does not have a hernia. Only some excess fluid built up around his testicle which will self correct.
He got fitted for his AFO's today - they had to take molds of his feet and legs using plaster and from that they will make the splints. They will have them made by Friday. The pair he will wear through the day will have American flags printed on them and the one he will have at night to correct his left leg rotation will be camoflauge.
Other than that he only had therapy. They modified his splints some more and did more stretching. He will be coming home with all kinds of new gadgets to wear. His wrists are doing so well - they've come around quite a bit! The doctors are shocked at how his feet have stretched out too so we'll for sure be scheduling his achilles tendon clip next visit.
Instead of coming back in 2 weeks for therapy follow up and then again two weeks after to see the doctors, they have decided to schedule us for both on the 27th. So we'll be back in 3 weeks and should only have to stay a few days.
We have news about Angelflight - we can probably go ahead and apply and get accepted fairly easily however there are a few humps we have to get over. First of all Chad won't be able to go - only one person other than Peyton can ride. Then they restrict your baggage to 50 lbs or less (we don't know if we can pull that off with everything we have to take for Peyton plus our own stuff), and then due to the huge distance they would have to arrange for 2-3 pilots/planes/locations for layovers because their pilots are restriced to 350 miles at the most. And since they can also cancel at any time for any reason - I could get stuck with Peyton somewhere with no help. I will probably talk to the hospital staff tomorrow and then make some other calls to see about any possibility of getting commercial airfare funded. We don't know - we'll have to get more information. We don't mean to try to find more and more problems but it's scary to think of getting stuck with Peyton in the middle of nowhere and me all by myself.
So anyway, tomorrow will be another busy day - much busier than today. He will see 4+ doctors (upper extremity, lower extremity, neurology, and geneticist) plus therapy twice. We're meeting up with some families from the convention who will also be at the clinic tomorrow and we're going to go out do something together after our appointments.
Peyton is hanging in there! He's had a really rough week but is doing so well. He is usually extremely exhausted when the day is over - his naps are interrupted while we're at the hospital and he crashes and burns for a while after. But he is so happy (when they're not cranking on his arms and legs)- we could just squeeze him to pieces. Yesterday we drove out the bay and today we rode around town. We try to enjoy a little bit of the city when we can, but we only have the evenings. We feel like we live at the hospital!
Wednesday, August 1, 2007
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