Wednesday, July 16, 2008

Something About Myself

I don't get on here and say much about myself. . . but tonight I was frustrated and wanted to share a problem or two (ok the term is GRIPE) while taking a break from packing.
Only very few know I recently have had 2 surgeries. Won't go into detail as to what they consisted of however now I am looking at a 3rd. It's like if there is the smallest, slightest, itty bittiest chance that something bad can happen....it's going to happen with me every time. Can't win the lottery though - go figure(well I guess you can't win if you don't play). And thats really all I have to say about that.....
And we are battling over Peyton's power chair - which was somewhat expected. I just want to drive him down to Cigna's office and say hey....look at my baby and I want to see you deny that to him to his face! My baby can't walk, crawl, roll, scoot, or anything... we just want to give him some feeling of independence and this is something he knows how to use! My goodness this child has been through enough and deserves to reap some benefit from this cruel world....
I will get off my soap box now.... Yes God is good and He will bless, I just had to blow some steam in the meantime. . .sorry. Please continue to pray for our little Peyton. He and his daddy are in Philly as we speak. Very first trip ever that we haven't gone together. They are safe and all is well. Peyton will get new casts tomorrow and after they will be on a flight to Columbus where we will be together again for the 2008 AMC CONFERENCE!!! After that it's off to my brothers' for a couple of days, back to Philly again for a night, and then we're off to Disney for a week. We will be in touch soon . . . .

Wednesday, July 9, 2008

Philadelphia

We found a WINNER!! They are doing a great job in Philly with Peyton. We are on trip 2 here with him. The first trip they did a repeat heel cord release like last minute arrangements, and immediately began serial casting. So we will be going through that again for the next couple of months - which means weekly trips to change casts out. They are casting him all the way up to the tops of his thighs and also bending his legs as much as they'll go each time so we are gaining some flexion rapidly. We are seeing some awesome results in just 2 trips. We are here now, were supposed to come home today however they decided to do another cast change Friday so we are just staying until Saturday.
Here is what they've said in a nut shell : Towards the end of serial casting on his feet in 2-3 months they will operate and put his left hip back in and also at that time the upper extremity specialist will release his right elbow, do his right wrist , and z-plasty on this thumb all in one surgery. So basically he will get his hip put in place and have more of a functional right arm/hand - and his right arm is the dominant one so this will be great and will open up a huge world to him.
Also quick note - Peyton had an awesome article in the Kingsport Times last week along with a great news interview - all for a fundraiser hosted by the Kingsport Mets at Hunter Wright Stadium on July 5 where they raised over 1200.00 for Peyton's medical/travel expenses. It was awesome! Morgan also threw the first pitch in the ballgame that night and did an excellent job. Can't wait to get pictures posted!!!
Say a prayer for us as this has not been an easy trip for us this go-around. It has been very stressful - hopefully things will even out in the future.