Power Chair on the Way!

Peyton made it through his trial and evaluation with a power chair and his very own is on order. . . should have it within a month or two. Insurance will take the longest. It will even have a function to where he can lower his seat all the way to the floor. It is amazing to see that our baby knows how to make one of those things go! Now he doesn't have the direction down pat yet but he definitely knows how to turn it on and go. We will just have to pray about the van situation. We don't know how much space we will have to get a ramp or lift and since it's just a mini-van and we have 2 other kids this could be challenging. We may be looking at a 12 passenger, ha ha. Also we now have him scheduled with Dr. Van Bosse in Philidelphia instead of the other doctor. He is officially on board there so we were able to get Peyton an appointment the same day his appointment was with the other doctor. We leave on Wednesday this coming week. We also heard they have an upper extremity specialist who will also be at convention this year. For those who don't know what I am talking about - July 17 - 20 is the Arthrogryposis Convention in Dublin, Ohio - just outside of Columbus. We attended last year's held in Dallas and will be attending again this year. We are getting so excited! Peyton was approved for a $500 grant to cover some of the travel expenses for this event so that's a huge praise! We have more news! Peyton will have surgery on July 7. This will be to circumcise and bring down his undescended testicle and possibly at that time they will correct the hydronephrosis of his left kidney. It will be outpatient at Knoxville Children's by Dr. Preston Smith so thankfully we are not travelling very far at all. We should be able to bring him home the same day. Peyton also got his elbow braces - finally! They work well -he only wears them a few times a day for about 30 min. each time and already has shown good progress. They are not too complicated to put on and he tolerates them well. BRADY IS FINALLY POTTY TRAINED!! One last thing, the end of July Chad and I are taking Morgan and maybe cousin Haley to Disney World - we are tickled to death! Morgan has been through so much - taking a back seat to the boys for so long in many situations and we want to finally do something big just for her. She's a great big sister and she deserves it. Brady's and Peyton's treat is going to be going to see Bob the Builder live at Tweetsie Railroad next weekend. We are thinking of going to the coast for a couple of nights to take Brady and Peyton but just can't find a time slot. We will be ambushed with plans from now until school starts. And then too I will be going back to work in August. We just can't make it on one income forever. Peyton will lose his SSI benefits (not the medicaid) but it just hasn't been enough to make up for me not working. So anyway.... we will report back soon with news after the trip to Philidelphia.