Tuesday, May 20, 2008

No to Lexington

Peyton had his consult with Lexington last month and it did not go that great. We were not impressed at all- it's a long story but just overall we were not happy and will not be going back. It was very disappointing but we know ultimately God will lead us where Peyton will benefit most. Our next trip is lined up already - we will be going to Philadelphia June 26 to the Shriner's Hospital. I'm feeling pretty confident this place will meet his needs given that Dr. Van Bosse from New York will be joining in with them as of next month. His initial consult is with another doctor but we had to get our foot in the door until Dr. Van Bosse is officially in the system.
Peyton got new AFO's with tread for weight bearing. They still slide off like the others did but work better overall and definitely look better. A local orthotics place is taking care of his splinting needs for now and they're doing a great job. He gets elbow splints Thursday to help with getting some flexion. And tomorrow a rep from Permobil is coming to talk to us and lend a pediatric power chair for him to test out for a few weeks. Sounds crazy, but they actually are proving the younger the better for teaching how to maneuver one of these things. We're really excited to see how this goes. If he learns anything about using one, and we can prove it to be beneficial, the insurance will pay for him to have one of his own.
He's doing great on his weight-bearing. We have him in a jumperoo, exersaucer, stander, and walker as much as he will tolerate and it gives his feet a good stretch. He's actively playing so much more now and doing amazing things. He interacts with Morgan and Brady so well and they just adore him. He's finally eating baby food very well now, and eating some table foods pretty well too. As soon as we can get him to take some kind of juice, water, or milk by sippy cup we're going to cut out the bottle but he won't take anything by cup yet. I don't want to make the mistake of putting whatever in a bottle and letting him think he can always just have what he wants from a bottle. We'll get there soon I guess..... not too worried about it. There's just so much to tell about him. He is developing his own little personality and it's just the best. SOOO HAPPY all the time. Loves to ride in his new forward facing carseat. He looks like a big boy!!! Lots of teeth coming in and he's still a little chunk!
We'll be posting again soon to update about everything coming up.....
Please pray for Chad's mom and dad. Larry is having some major medical issues right now and they need answers and treatment.